Bonn - In mid-February, the Cystic Fibrosis Association handed over petition with more than 80,000 signatures to the chairwoman of the petitions committee of the German Bundestag, Kersten Steinke (Die Linke). With this, the association and the signatories want to achieve improved care for people with the genetic disease.
"We need structure that ensures the medical care of cystic fibrosis patients and their adequate funding nationwide in uniform and sustainable manner", said Stephan Kruip, CEO of the. The organization started the petition in mid-January and called on people across Germany to support the cause.
As result, numerous people had cystic fibrosis outpatient clinics, doctor's offices, pharmacies, kindergartens, in their own circle of friends, in their families and in pedestrian zones solicited signatures in other groups. “The success of the petition clearly shows that the issue is urgent. We have to act quickly here, ”said Martina Stamm-Fibich, Member of the Bundestag from Erlangen, who got the initiative rolling.
According to the association, it has been shown in several places in Germany that the care of particularly adult patients is not guaranteed across the board. One example of this is the cystic fibrosis outpatient clinic in Erlangen. Due to decision by the admissions committee, adults are no longer allowed to be treated there in the children's clinic, but adult medicine lacks the capacity to take on seriously ill patients. “The example shows that something has to change,” said Stephan Kruip. "We are confident that we can make difference here through hearing in the Petitions Committee."